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Get the free app no ads · no paywallHealth · 28 August 2026
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Marc Powell, who has a rare MND variant affecting fewer than 100 UK people, could die within a year while awaiting a treatment. Drug maker Biogen offers Tofersen free, but hospitals must cover administration costs, limiting patient numbers. The health watchdog NICE won't decide on NHS funding until next March, too late for many.
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