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Why are diagnoses so slow?

The story highlights that people with hypermobility conditions often wait nearly 20 years for a diagnosis. This delay is partly due to a lack of dedicated NHS guidelines for doctors, leading to inconsistent care. Experts describe it as a 'postcode lottery,' meaning access to diagnosis and treatment depends heavily on where you live, rather than a standardised national approach.

Stories that explain this

Hundreds of thousands with hypermobility face long waits for diagnosis